Monday, April 7, 2008
Derek's pictures
Monday, January 28, 2008
In which I try to show Derek how blogging works
Monday, December 24, 2007
Hey look! I got a digital camera for Christmas!
So is Allen:
Ball:
Eyeball:
Lunchbox:

But the really great part of getting this camera is that now I can take pictures of Lego sets to sell on eBay and get the money to pay for Derek's continued speech therapy. Friday was our last visit with our beloved therapist at the Scottish Rite Clinic (free and doesn't discriminate based on income!!). The object of their program is to get kids ready for school and since Derek is in school and doing well, it was time to leave the SR program. Plus, our therapist got a full time position at OHSU, so it was sort of a natural time to break things off. We're looking at several therapists, none of which our insurance covers, naturally. So Allen agreed to sell his Lego sets. There's an entire room of our house dedicated to the Legos and they should fetch a couple thousand dollars when we're all done. But first a working digital camera was necessary. Next, I'll parcel them out and sell the Legos online. And have more interesting blog posts. Unlike this one, which is quickly going downhill into boring details. Look, more pictures!

Sunday, November 25, 2007
School Conference and Thanksgiving
I wish wish wish my digital camera was working because I would love to post pictures of some of Derek's writing. He is writing and drawing on practically everything these days. He can write the words "penny" and "moon" and likes to write jibberish all over the paper. He gets worksheets at school that have a letter, then a line of other letters and his job is to pick out the letter that matches the first letter. He recreates these at home and makes me do them. He also likes to draw on himself and the walls and somehow always draws his best artwork there. Yesterday it was a picture of a person sleeping in a carseat on his arm. A few weeks ago he drew an expressive person on my bedroom wall and it's still there, partly because I am lazy, but mostly because I am impressed. I think since school started he has spent more time drawing than lining up toys. Holy cow! She's a powerful sorceress, this Ms. McCormick.
Derek is with typical kids for Music and PE and is doing well. Some humming and weird vocalizing, but overall very well behaved.
Overall, I think Derek is in a really good placement for Kindergarten, about the best it could be given our financial and geographic constraints. And for that I give Thanksgivings.
Thursday, November 8, 2007
Still Eating at the Table - Woot!
Errands after school are really hard, though. Derek is exhausted and cranky and I've been dealing with plenty of crap at work, so patience is in short supply on both sides. Some afternoons are mostly temper tantrum, recovery, temper tantrum, recovery, temper tantrum, etc. But we had a good day yesterday. We didn't go anywhere because I did the grocery shopping before he came home from school. I wasn't feeling cranky or spacey from work, he didn't have to behave properly in the overwhelming grocery store.
Derek is excited about traffic lights these days. He used to have a compulsive thing where he would only walk down the street if the light up ahead was red. He hasn't done that in awhile. Now he likes to make his vehicles wait for the light when he's playing. He's really bossy and makes us all wait incredibly long. If there were real traffic lights that long, I'd fire the traffic engineer. Derek also comments on the state of the traffic lights as we are driving.
I went to yoga class in ages yesterday. My work got a grant to bring in a yoga class to the students and the teacher has extended complimentary yoga classes to the staff. The teacher is excellent and I enjoyed myself very much. My therapist will be proud of my excellent self care. Derek got to hang out with Sean and Uncle Adam, which he usually seems to like. Once it becomes part of the routine, I hope everybody will look forward to Wednesdays.
Next time I will try to comment more on the tantrums and think about how they could be prevented.
Tuesday, October 23, 2007
Eating Salad at the Table
Neither Allen nor I like melon or raisins. If our kid were typical, we'd probably have a completely melon and raisin free house, missing out on all that iron my mom goes on and on about every time I say I don't like raisins. Our child would go places and be rude not eating other peoples melon and raisin fruit salads. But lucky for us, he cares naught for what we like and decides whether he likes or dislikes something all on his own and will eat raisins, melons and peas with abandon where ever they are served.
Since I introduced the idea to him, three years ago or more, Derek hasn't liked anything leafy - green salad, collard greens, beet greens, mustard greens, kale, creamed spinach. Barely a bite. This has resulted in a lot of brocolli and cauliflower consumption at our house outside of green bean and asparagus season. But suddenly this last weekend Derek got excited about salad.
I was going through the vegetable drawer and found some spinach. Derek wandered by and exclaimed "Salad!" He tore off a bite and ate a bit of raw spinach. Who is this? Who stole my child and replaced him with this changeling?
Yesterday we're in the produce section walking toward the wall of salad. "Salad!" he exclaims again and runs over to choose a bag. He even chooses one of the larger bags of your basic green salad mix. I'm still a bit suspicious, so I suggest he choose the smaller bag.
This is where the other part of the title comes in. For the last couple years, Derek hasn't liked to eat at a table. He'll eat while wandering or while watching TV or while playing, but hardly ever at the table and it's a losing battle to get him to sit at one. Last week after school, he ordering me around a pretend school day. He'd pretend to hand me a colored ticket and insist I go to that station. It occurs to me that I can hijack this system school has drilled into his head and make our kitchen table like a station at school. I made a little purple envelope and two purple tickets. Now I give him that ticket and say "Go to purple" and he will go sit at the table.
The potential flaw in the plan is not in the system, but in the person implementing the system. I've made countless resolutions to get Derek to sit at the table, to eat real meals, and so on. I'll get enthusiastic for a week and then slack off and things are back to the status quo. And the guilt and self-berating begins. However, I think I have a new perspective on this. For the last five years I've been pretty consistent about bedtime. I take him through almost the same routine almost every night. So if I can do that, I can establish and consistently take him through a dinnertime routine. School has established this ticket system for me, so I don't have to train him on that. It's good for both of us to sit down together for dinner, so it will reinforce itself soon, like bedtime does. And now I've got both of you gentle readers to remind me. Yay!
So yesterday I implemented the new system. He sat down to dinner. I served salad. He ate some. A flake of snow fell in hell.
Saturday, October 20, 2007
Throwing
So here is the draft of his story:
Derek Throws: The Pleasure and the Peril
Sometimes throwing is good and fun to do. Sometimes throwing is not okay.
Catch is a fun game. I like to play catch. I know that someone is ready to play catch when they are looking at me and have their arms out, ready to catch. Then it's best to throw the ball right to the person. Then they will throw the ball back and we are playing a fun game of catch!
Sometimes I have to put some garbage in the garbage can or some clothes in a laundry basket. It can be fun to throw the clothes or the garbage in their place. I might even practice making baskets by throwing beanbags into a basket.
It is not okay to throw things when I am angry, sad, or frustrated. I might break the thing I throw or hurt another person. Instead of throwing, I could cry, say "I'm mad!", hit the floor or a pillow with my hands, or take a break.
Throwing things can be lots of fun, if I do the kinds of throwing that are okay.
Ta-da! What do you think, y'all?
Friday, October 12, 2007
Hey guess what!
Tuesday, October 9, 2007
Gender
Our next challenge is getting him to use gendered third person pronouns properly. Right now it's pretty random. He, she, it, is all mixed up and rather arbitrary.
At the crux of using the right gender to refer to people is realizing what gender they are. And I don't think Derek really gets it. He's seen Allen and I naked and has noticed that Allen has a penis and I don't. The old school way to explain gender is the "boys have a penis and girls have a vagina." However, though that is how people tend to get put in gender categories, it's not how we know that people we meet on the street are girls or boys. It's all those secondary sex characteristics that people display. In this day and age they are such subtle cues, too. I'm having trouble figuring out what "rules" for gender to present to Derek. Girls wear skirts, but not all the time. Men have beards, but not all of them. Long or short hair gives you no clue these days. Girls just kinda look like girls and boys just kinda look like boys.
Perhaps we should go be Amish. Oh wait, no Homestar Runner.
Monday, October 8, 2007
Word Wall
Derek's teacher has a "Word Wall": a place where she posts words that the whole class knows how to read - two are added every week. (He's starting to read. Have I mentioned that this blows my mind?) Derek made his own "Word Wall" at home this weekend. It has the words "I", "am" "the" and "little." I is quite clear. Am is almost legible. But the other two are pretty much jibberish. Eh. It's fun that he's taking things home.
He's also very excited about lunch. He's playing at packing a lunch and reinacting the school routine at home. He sets his lunch out and puts his lunch box in a laundry basket. He'll pack a lunch for me and make me sit down too. He tells me to "Eat your sandwich." (Notice correct pronoun!)
Other things from school showing up at home: telling the dog to say the months of the year, pretending to hand me pennies and dimes and telling me how much they're worth, "Sit on chairs, not under tables," a new clean up song. Perhaps they sing "Allouette" at school because he's often humming the tune. He doesn't tell me directly, rather he'll reinact things or say seemingly random echolalic phrases and that's how I know something about what's happening. I need to be a bit of a detective. I'm not sure how he feels about the things he is reinacting at home. Are these things he enjoys or things that cause him anxiety?
At home, he's decided that The Blow's "Bonus Album" is his favorite CD and insists on having it playing whenever we drive somewhere. He's also displaying some new play scenarios, like his figures going to the Harley store. He's added motorcycles to his list of things he can/will draw. We stand the drawings up and there's your Harley store. He also loves going on motorcycle rides with Allen. A couple weeks ago they went to the park together on the motorcycle while I was working and when I came home Derek was very talkative and engaged.
That's all for now, but I got a list at home of blog topics, including a reaction to the book "George and Sam" and some thoughts about Derek's diagnosis on the year and a half aniversary.
Thursday, September 20, 2007
Kindergarten
Reports have been good. The teacher’s mostly write “Nice dayJ” in the communication log. He doesn’t have much to say about school once he gets home, but he responds well when I tell him it’s time to get dressed for school and comes home tired every day. So I think he enjoys it.
Last night was back to school night. I started the night feeling a bit creeped out being in a school and with lots of upscale parents, continued to feel rather out of place as the school foundation talked about their fundraising projects, like flipping a house in the neighborhood and holding a $50/ticket auction, but the presentation from the teacher was good and she said that working in a school like this has been really great. The teachers in general are supported well. There’s a music teacher, a PE teacher, and a librarian all on staff, which is unusual in any public school these days, apparently, let alone the cash-strapped Portland Public Schools.
(And just that afternoon I was bitching to a friend about how my librarian duties have a lower priority than my janitorial duties on a daily basis and how that makes me cranky about my job. So I know the teachers there are happier in their jobs than I am in mine. But that’s another story.)
The special ed classrooms are integrated into the school and the children there are the school’s children, not just special ed’s kids. They get exactly the same curriculum as the general ed classrooms, not ten year old hand-me-downs. This is fantastic because the idea of these classrooms is that the children in them need behavior and communication accommodations, there is no need for them to be behind their peers academically or have ancient books. They can step right into the general ed classrooms, they’re in the same place in the same books. One of my biggest concerns placing Derek in this classroom was that he wouldn’t get much contact with typical children, like he did in his preschool, that he’d be shut away, separate from the rest of school. I’m still a little worried, but hopeful overall. I was also glad that the classroom has toys and colorful bulletin boards and art hanging from the ceiling. It’s not dreary and bleak.
I also learned that Derek has picked out a few kids in the class that he favors. He wants to sit by them in circle time and pokes them to get their attention. This is good news! Last year in preschool he didn’t seem to have much preference or desire for playmates. I’d ask about who to invite for a playdate or over for a birthday and his teacher would have a hard time coming up with anybody.
And it’s for free! (Well, except for the fundraising and selling and donating and auctioning and appealing and flipping the neighborhood house.)
Baby's First Pun
So Allen and I were nearly comatose Saturday while Derek’s jumping around being silly. He gets one sock from his sock pile – just one, he makes a note of – and then starts jumping around on our bed and messing with the lamp. And then it comes onto me all at once – sock, socket!
Me: “No socks in the socket! Are you crazy?!”
Derek: [Manic giggle] “No socks in the socket!”
[Hilarity ensues]
Tuesday, August 28, 2007
It's the country life for us
The property out there is a sort of a compound. There's a central single-wide mobile home and several additional trailers, greenhouses, and mysterious buildings. (Tornado shelters?) We slept in one of the RVs. I was mostly grateful that it was horizontal and free, but Derek adored the accomodations. He'd wake up in the morning and chatter on and on about the trailer - the curtain, his bed, the dog's spot, a sink, the light with no light bulb, the mirror, the windows, the doors, the local puppy coming to visit and going in and out and in and out and in and out, oh, oh!! There is not a snooty bone in my kid's body.
Thursday, August 23, 2007
Yay for Speech Therapy
Sunday, August 5, 2007
Sometimes we're happy
Saturday, March 10, 2007
Don't make me pull this grocery cart over . . . .
The other night Derek had a complete meltdown in the middle of the grocery store because we couldn't go on checkout 7. And in one of my less proud parenting moments, I nearly joined him. For chrissake, what do you do in that situation? Stand there and unload the groceries at the closed checkstand? Ask a clerk to open it? Leave the groceries? Leave some money on the checkstand to cover it and walk out? Leave him at home to set the house on fire and go grocery shopping by myself? Yell at him to suck it up and go through the checkstand that's open and give anybody who wants to think about criticizing me the death stare? That last one will get the job done, but cleaning up the bodies, and the ensuing indictments and prosecution, is a little messy. Perhaps there is a solution that avoids the rigidity all together?
Other compulsions, so y'all know what I'm dealing with here:
Only wants to ride certain numbered buses at certain times.
Refuses certain types of transportations sometimes, but not others. (For instance, usually okay with the bike, but not always)
Won't go down some aisles in the store.
Refuses to ride yellow or blue line trains. Will only ride the red line.
Will not walk down the street when a light up ahead is green, only when the light is red. Actually getting better about this, but it's still a very slow process to get down a busy street. Downtown Portland is nearly impossible.
Sliding doors. He must be the one who controls them, so we have to wait for them to close completely before we can go, at busy times, that's five minutes or more.
Insists that stove dials be turned to a certain number (not always the number I want) until I yell at him that it's not his job and he runs away crying.
Must control what number of minutes the microwave is set for. Often too much or too little.
How do I convince him it DOESN'T MATTER which checkout we go through, just that we go through one? It DOESN'T MATTER which bus we take, only that we get to speech therapy on time? That the number on the stove dial or the microwave dial DEPENDS on what we're cooking, not on his whim? And how can I get my groceries delivered for free so I don't have to put up with this crap?
(That's lipstick in the picture, by the way)
Sunday, March 4, 2007
Autism Tai Chi

Today I made a connection with this principle of tai chi and dealing with autistic symptoms with this principle in mind. We had a family outing to Lowe's today to pick up a few things. Derek wanted to go through checkout number 10, but it wasn't open. He was leaning out of the cart and grabbing the racks to resist that checkout aisle. We could have fussed and yelled and forced him to go through the checkout he didn't want to and dealt with an epic meltdown. But instead Allen made a game out of Derek's resistance, rocking back as Derek pushed away, then rocking forward again, back and forth, back and forth. Derek actually started to think this game was kinda fun. But he still didn't want to go through checkout eleven. So we put our things on the counter and I pushed the cart through checkout ten, coming around to pick up the stuff at checkout eleven. That little bit of accommodation and "indulgence" saved us from a lot of misery.
The same principle applies to dealing with self-stimulatory behaviors. For Derek this is stuff like humming, pushing buttons, and flicking light switches. I've learned, slowly but well, that these things satisfy a need for him, not a want, and can't be forced into submission. They need to be recognized and worked through, not against. I try to make them into an opportunity for connection and social interaction. For instance, when he's humming, I hum along with him and then change something about it—hum higher or lower, faster or slower, change the tune, add words, put his hand on my lips to feel the vibration, etc. When he flicks light switches I'll pretend to be scared of the dark, or try to scare him with a playful "Boo!" when he switches on the light. And from there I try to move into an interaction, leveraging the "undesirable" behavior into desirable.
Patience, grasshopper.
Saturday, March 3, 2007

Wednesday, February 28, 2007
New keyboard, new conversation, new pictures, new sickness
Here's me and Derek's best conversation yet:
Derek: (hands me a pretend something)
Me: What's this?
Derek: Ladybugs!
Me: (pretend to eat ladybugs)
Derek: No!
Me: Okay. (Dumped ladybugs in his juice)
Derek: Oh! Swimming!
I thought of two solutions for the hitting and pushing at preschool. The first was some cards with pictures of the rules drawn in my own fine artistic hand. No hitting! No pushing! His preschool teacher told the kid he'd been bugging on Friday that when Derek started hitting or pushing him, he could tell Derek to stop and then go get these cards. For the second, I realized that a more socially appropriate way to get the same sensory input for Derek is a high-five game. Gimme five! On the other side! Through the hole! Break the stick! Up high! Down low! Too slow, Joe! Break the pickle! Little tickle! So I suggested that the other kids can try to engage Derek in a game like that. (Anybody watch that Family Guy episode where Peter pretends to be retarded and gets an aide at home who offer high fives all the time?) The tactics actually worked really well on Monday. The teacher has a fire truck tent set up in one of the rooms as part of community helpers week, and Derek and this kid played together in the tent for about twenty minutes. I think this is another personal Guinness record for Derek.
The hitting and pushing in crowded situations is a different animal, I believe, after some insight from Jennifer. She saw Derek do some pushing at a charter school information night. She thought it looked like a "get away from me now, I'm overwhelmed" sort of push. It was a loud, noisy, small room with lots of children and twice as many adults. Music Together is also overwhelming to his senses. I used to be able to prep him with the brushing technique that the Occupational Therapist taught us, but he hasn't let me do it to him at all for several weeks.
Unfortunately, the Bebe is sick again. It was only two weeks ago that he recovered from his last fever and now he has another. While Derek's laid out on the couch, I'm cleaning and cooking like mad. It's the only chance I'll have to do it, and if I get sick I don't want to be wallowing in my own filth with no supplies for a week again. I'm also getting very familiar with all the kid's TV theme songs and they are stuck in my head and come out at weird moments at work. I tried to explain this one show, apparently one of Jim Henson's last hallucinations to a co-worker the other day. See, there's this psychedelic bus with a engine that sings during transitions and these Hoobs have come to Earth to find out all about life here. They have their own hoobety-doop sayings and whenever they see each other they say "Hooble-doop, hooble-doop, gooooooo Hooble-doops." It's groovy, baby. Allen and I are looking for an herbal supplement or something to strengthen Derek's immune system so we don't have to be subjected to so many theme songs anymore.
Friday, February 23, 2007
Wrestlemania
Derek likes a more real-life approach to wrestling. This week at Music Together he mainly wanted to run laps around the room and crawl around head butting other kids in the belly. So he spent a lot of time wheelbarrow walking and wrestling. I drew pictures of his bad behavior and big no signs over them. "No running!" I said. "Yes running!" he said. "No running!" "Yes running!" "No running!" "Yes running!" No running!" "Yes running!" "No running!" "Yes running!" "No running!" "Yes running!" "No running!" "Yes running!" "Gagh!" "Tee hee!" Full of beans.
Derek's also exhibiting pushing and hitting behavior at preschool. I was parent helping today, and all day he would approach kids and push them. At snack he had to leave the table for a bit because he wouldn't stop hitting the kid next to him. Now on the one hand, it's great he's making social overtures. On the other, they are sooooooo inept, he has to be discouraged. I'm trying to figure out how to get him to make overtures that are both acceptable to other people, and that he's capable of doing. Many people over many months have told him to say "hi" or "let's play," but he doesn't want to use words. It needs to be more basic than words, but less violent than head butting.
The behavior may be related to his diet. We started the GFCF diet January 1. This last weekend we didn't have any infractions and I made an effort to keep soy consumption down. His preschool teacher was commenting early this week that he's talking more and looking at faces more. He's also being a bit more of a pain in the butt, but in a funny, happy, teasey way. Then Wednesday he ate several bites of cheese toast while Allen and I were having a conversation. Then Thursday he poured himself a glass of milk and drank half of it while I was distracted by something so stupid I don't even remember what it was now. And the later part of this week was marked by rigid thinking and head butting. So maybe this is an indication that the GFCF diet is working. Epsom salt baths are supposed to help purify the body after an infraction, so I tried that tonight. We'll see how the rest of the weekend goes.


Merry Christmas!! Love, Karen and family.